“We are proud to partner with leading advocates and advocacy groups in recognizing the impact of epilepsy and COPD on patients and their families,” Nobuhiko Tamura, Sunovion’s chairman and chief executive officer, said in a press release. “We believe it is important to support the epilepsy and COPD communities and the role of caregivers in helping patients with these conditions.”
In partnership with the Epilepsy Foundation and the actor and advocate Greg Grunberg, Sunovion launched the “My Epilepsy Hero” social media campaign. The campaign aims to give people affected by epilepsy the chance to recognize those who have had a positive impact in their lives, either through support or inspiration. An epilepsy hero can be anyone, from a close family member to a health care provider, a mentor, a teacher or a friend.
Until Dec. 16, people are invited to participate by posting a video or a photograph of an epilepsy hero on their Facebook or Twitter accounts, using the hashtag #MyEpilepsyHero.
When 500 heroes have been publicly recognized, Sunovion has pledged to donate $10,000 to the Epilepsy Foundation.
The campaign Aim for Zero was created to raise awareness for SUDEP and to promote four steps it says can help prevent it: taking prescribed medication, getting enough sleep, limiting alcohol intake, and striving to stop seizures.
To participate, patients can share plans to incorporate these four behaviors on their social media accounts, using with the hashtag #AimForZero.
The Epilepsy Foundation this month is also running an “Adulting with Epilepsy” campaign (#adulting) — a series of messages that share strategies and tips to help young adults cope with epilepsy — and the “Unwavering Ally” campaign (#UnwaveringAlly) to inform the community about the different ways the Foundation supports people with epilepsy.